1 July 2018 — 30 June 2023
Our flagship project, the National Stigma Report Card is being conducted in partnership with the Melbourne School of Psychological Sciences at the University of Melbourne, with the generous support of the Paul Ramsay Foundation.
A National Stigma Report Card will be created from a comprehensive survey of people affected by complex mental health issues, researching their experiences of stigma and discrimination. This figure represents approximately 1 percent of Australians living with complex mental health issues. The survey, titled Our Turn to Speak, is the largest survey of its kind conducted in Australia to date.
Our Turn to Speak is a national survey that seeks to understand the life experiences of people living with severe and complex mental health issues in Australia. In order to advocate for better support and improved social outcomes for people affected by these issues, we are looking for a sample of 7,000 respondents who reflect Australia’s diverse population.
All responses will be kept confidential.
The findings of the Our Turn to Speak survey will inform SANE’s future advocacy efforts as we work towards improved social outcomes and support for Australians living with severe and complex mental health issues.
This confidential survey is open to any adult aged 18 and over residing in Australia who has been living with severe and complex mental health issues over the last 12 months.
Information for participants
To be eligible to take part in the Our Turn to Speak survey, you must be an Australian resident, aged 18 and over, who has been living with at least one of the following severe and complex mental health issues over the last 12 months:
- Schizophrenia spectrum disorders (such as schizophrenia, schizoaffective disorder or schizophreniform disorder),
- Bipolar and related disorders,
- Personality disorders (such as, but not limited to, borderline personality disorder),
- Obsessive-compulsive and related disorders (such as OCD, body-dysmorphic disorder, excoriation disorder, trichotillomania or hoarding disorder),
- Post-traumatic stress disorder,
- Dissociative disorders,
- Eating disorders (such as anorexia nervosa, bulimia nervosa, avoidant/restrictive food intake disorder, and binge-eating disorder),
- Severe and treatment-resistant depression and anxiety requiring multi-agency support.
We are seeking responses from people who have received a formal diagnosis, as well as those who have not been diagnosed formally, but believe they may be experiencing one of these mental health issues.
How to get involved
You can complete the survey online or make a time to take part via phone interview from, between 9am–8pm (AEDT), Monday–Friday.
Visit ourturntospeak.com.au to find out more.
Information for Supporters
Now, we need your help. Reaching 7,000 Australians from diverse backgrounds across this large country of ours is a serious undertaking, and we are asking like-minded organisations to help promote the project within its networks.
To help raise awareness of the survey, our team has prepared a Supporter Kit complete with social media tiles, posters, and newsletter content.
Check out some of our Key Supporters here.
- Dr Michelle Blanchard
Director, Anne Deveson Research Centre
- Dr Chris Groot
- Dr Imogen Rehm
- Dr Cal Andrews
- Beth Hobern
- Lisa Sweeney
Head of Policy and Advocacy
- Rebecca Hyland
Government Relations and Sector Engagement Coordinator
- Rikki Morgan
Communications Officer – Research